The Democracy Movement and Matthias Rath *updated*

This blog has been updated with a response from the Democracy Movement to the original post and my subsequent reply (see end).

The Democracy Movement is an anti-EU lobbying group which arose from the ashes of James Goldsmith’s Referendum Party with the help of funds from his wife, Lady Annabel Goldsmith, and businessman Paul Sykes. The Democracy Movement declares itself “a non-party campaign to defend liberal democracy in Britain and across Europe.and is opposed to the single currency, the Lisbon Treaty and the EU Constitution.  The Democracy Movement see their role as working

[...] alongside groups similarly committed to challenging the current structure of the EU. In the eventuality of there being a referendum on the EU Constitution or the euro, the DM will give its support to the official umbrella campaign that will be appointed by the Electoral Commission. A broad popular alliance including democrats from the left, centre and centre-right will be needed to safeguard liberal democracy and prevent the creation of an authoritarian Brussels-based government.

So far, so mainstream UK anti-Europe thinking.  Another anti-EU organisation is the European Referendum Initiative (ERI).  This was founded by Matthias Rath, the vitamin salesman who conducted illegal AIDS trials in South Africa and supports AIDS denialism which is estimated to have contributed to over 300,000 deaths in South Africa alone.  The ERI regards attempts by the EU to regulate the sale of health products as a conspiracy by large pharmaceutical companies to facilitate medical experiments on the population similar to those inflicted on Jews by Nazis during the Holocaust. The Democracy Movement are now supporting the European Referendum Initiative.

Last week I wrote to the Democracy Movement expressing my concerns about this support, at the time I believed that perhaps the Democracy Movement has been careless in their choice of partner and failed to provide an appropriate degree of circumspection to collaborations with anti-EU organisations prone to attracting views outwith the norm.  After all, the ERI had previously managed to fool several MEPs into supporting it, albeit indirectly. So I wrote this email:

I notice that the European Referendum Initiative (ERI), an organisation purportedly campaigning on the Lisbon Treaty and access to alternative medicine, has cited the Democracy Movement as one of its supporters [1].

The ERI are funded and controlled by the Dr Rath Foundation, an organisation headed by Matthias Rath, a particularly odious individual who is partly responsible for the AIDS catastrophe in South Africa [2].  The ERI for a number of years have been trying to inveigle their way into EU politics through anti-EU rhetoric focussing on alternative health [3].

I have some questions regarding the Democracy Movement’s cited support for the ERI
1) Are the Democracy Movement correctly cited as supporters of the ERI?
2)If so, do the Democracy Movement endorse the ERI and thus the Dr Rath Foundation?
3) If not, will the Democracy Movement publicly dissociate themselves from the ERI?

and this is the response I received.

1. Yes – because it is an initiative against the Lisbon Treaty and in support of peoples across Europe being given a say on it. We also support the campaign against the EU outlawing perfectly healthy and acceptable alternative medicines and herbal remedies, as they are being lobbied to do by the expensive lobbying teams of the major pharmaceutical corporations.
2. Yes, we endorse the ERI but (contrary to the weak ‘thus’ in your question) no, we are not affiliated to the Dr Rath Foundation and cannot necessarily be taken as supporting its outlook or actions in the many other areas in which it is active. We are affiliated to the ERI, which as you saw has clearly defined aims and which has a range of other supporting groups and organisations. Many of these operate in markedly different fields to us, but the ERI is about what supportive groups have in common; on the Lisbon Treaty and against EU action to outlaw herbal remedies. As a eurosceptic pressure group, we certainly wouldn’t claim to have all the answers about the right course to combat a complex and troubling problem like AIDS in Africa, or indeed many answers in the field of public health more generally, but I’m quite sure these are issues that are hotly debated by groups active in the field. Likewise, we wouldn’t expect any ERI-supporting groups to share our view on, say, the EU’s authoritarian activities in the field of criminal justice, such as the EU Arrest Warrant, email and internet monitoring laws or the immunity from prosecution of officers in its ‘operational’ police force, Europol.

3. No – because of the points made in No.1.

The ERI website is registered by Matthias Rath and run by the Dr Rath Foundation, an affiliation with the ERI is an affiliation with Matthias Rath and the Dr Rath Foundation.  No amount of weasel words can break this link.  It looks like the Democratic Movement’s hatred of the EU has blinded them to the character of some of their affiliates.  Not only that they seem spectacularly ignorant of the science and politics of HIV and AIDS denialism as well as that surrounding the regulation of vitamin supplements and herbal remedies.

The Democracy Movement’s involvement with Matthias Rath would be only a minor cause for concern were it not for the background of their members and supporters.  Lady Goldsmith’s son, Robin Birley, a former chairman of the Democracy Movement, funded David Davis’ unsuccessful campaign to become the leader of the Conservative Party.  Paul Sykes has demonstrated he will throw his considerable wealth behind a party that shares his views, and withdraw it when they do not. He is now a supporter of the Conservative Party.  These are rich and powerful people with rich and powerful friends.  As well as this they also have some influence in anti-EU politics.  Members of the Democracy Movement have spoken at the respectable anti-EU thinktank The Bruges Group, where they shared a platform with then shadow minister Oliver Letwin.  More recently the eurosceptic MEP Dan Hannan and representatives from the Tax Payers Alliance, popular amongst the Libertarian Right, have spoken at their events. Democracy Movement member, Marc Henri Glendening, a former chair of the Federation of Conservative Students (then the youth wing of the Conservative Party) is a contributor to the Conservative Home website, which is considered reflective of the views of many members of the Conservative Party.  Nor are the Democracy Movement politically neutral despite their claims, Stuart Coster, who wrote the reply above, runs an anti Liberal Democrat website , presumably because he feels it is unacceptable for a party to be pro Europe, and the Democracy Movement host anti Liberal Democrat literature.

None of this is to say that any of the above support the actions of Matthias Rath in South Africa nor endorse AIDS denialism (although some sections of the Right do).  I think this is merely an example of people assuming that an individual who shares their views on one issue is worth supporting, even under a shadow cast by the corpses of 300,000 South Africans.  This amoral pursuit of political objectives is undesirable.  Especially so when the impact of these objectives has not been considered.  Take the regulation of the sale of vitamin supplements and herbs for example, claims of efficacy are generally only permitted with robust evidence and doses of pharmacologically active compounds kept within safe limits.  Proposed EU legislation is designed to improve this to protect the consumer.  What Matthias Rath and his alternative health supporters want is for these restrictions to be loosened so they may be free to ply their evidence free trade with little intervention from the law.  Indeed Rath has already taken his vile pursuits to Russia, where the rule of law in commerce and public health is often weak.

The Democracy Movement do not understand that although Matthias Rath may oppose the Lisbon Treaty he also wants to peddle his miracle cures to the desperately ill, he is not a friend to the respectable.  If purportedly respectable anti-EU organisations succumb to the advances of murderous quacks such as Matthias Rath then it discredits their movement and those they share a platform with. If there are eurosceptic Tories reading this then they need to make sure their party does not fall prey to the folly of assuming their enemies enemy is their friend and accept conspiracy theories over the EU as peddled by the alternative health movement.  It would be a disaster if political objectives were put before the health of voters.

Update

The following email was recieved from the Democracy Movement, I have published the text below unedited and included my reply beneath.

I appreciate you clearly have an issue with Dr Rath and his activities in what you call ‘AIDS denialism’ (though, from what little I know of the problem, isn’t the debate more about best treatment rather than denial of the existence of the disease?). So I sense misrepresentation there already on your part, before even looking more deeply into the issue.

But I’m afraid expecting a eurosceptic pressure group that has simply signed up to aclearly EU-focussed initiative to take a view on who is right or wrong over such complex unrelated questions being addressed by other participants in the initiative is, I have to say, not a reasonable line of attack.

It’s where you later go throwing together selected snippets about our supporters and activities to try to portray us inaccurately as Tories that you really undermine any faith I may have been open-minded to having about your judgement of Dr Rath. I’m afraid the technique of association you have sought to employ can work both ways, and you’ve rather shot yourself in the foot if you were hoping to persuade us to take your views about Dr Rath seriously.

For example, Robin Birley had long stepped down from the DM before (if indeed he was) being involved in David Davis’s leadership campaign. As had Paul Sykes before he supported any political party. I’m sure no reasonable person would think that they both must abstain from all political activity in perpetuity, for having once been involved in the DM. Which is presumably why you neglected to detail the timeline.

Plus our supporters speak on all sorts of platforms, not just Tory ones. For example, Marc was last weekend speaking at the trade union-based Campaign Against Euro-Federalism AGM in Birmingham. Neither, obviously, do you have to be a Tory supporter to contribute to ConservativeHome, and who could criticise a pressure group for seeking to influence a party that may well become our next government?

More fundamentally, being non-party clearly doesn’t mean we can’t criticise any party. That would be absurd. We criticise them all. You similarly neglected to mention our current Cameron-critical postcard campaign and recent series of blog posts. It’s true the Lib Dems have more recently come in for a special focus from us, for arguably behaving the worst of all over the promised Lisbon Treaty referendum. At least Labour’s position, as much as we disagreed with it, was consistent. Whereas the Lib Dems abstained in the Commons and voted against a referendum in the Lords – basically, voting whichever way it took at each stage of the process to prevent people being given the promised consultation on transfers of more decision-making to remote EU institutions.

What you’ve done by omitting such ‘details’ from these and other similarly cheap jibes about us is shown me that you’re not so interested in reality as manipulating information to serve whatever agenda it is you are pursuing. Which makes it particularly rich that you talk of “weasel words”.

Are you interested in restoring your credibility by publishing these clarifications and portraying us accurately? Or should I continue to assume that all your portrayals are similarly misrepresentative?

My reply:

With respect to your comments about Conservative Party funding, ConservativeHome and your allegation that I tried to portray you as Tories. My intention was not to suggest that the Democracy Movement was a Tory led organisation, but rather that the individuals behind it have some influence in mainstream politics, both in their funding of political parties and the credibility of the platforms they use. The intent of this was to portray the DM as a credible organisation by virtue of having access to the ears of those in politics and to make explicit the observation that they express views considered acceptable in mainstream political discourse. However, this, and any arguments over the precise nature of your opposition to the Liberal Democrats, are irrelevant to the main point I made. Your association with Matthias Rath risks discrediting your arguments and those that share them.

Matthias Rath is truly an odious individual. I would strongly urge you to read Ben Goldacre’s article on Matthias Rath [1] or at the very least his wikipedia page [2]. If you have more time then I recommend that you look through the Treatment Action Campaign’s documents on Rath [3]. These should provide you with more information on the character of the man, quite apart from my own opinions.

Researchers Identify Previously Unrecognized Genetic Disorder (Medical News Today)

Researchers from four laboratories that perform diagnostic genetic testing of chromosome abnormalities in individuals with unexplained physical and developmental disabilities recently identified a previously unrecognized genetic disorder…

Genetic mutation in African-American men with family history of prostate cancer discovered (News-Medical-Net)

Shahriar Koochekpour, MD, PhD, Assistant Professor of Microbiology and Immunology, Biochemistry and Molecular Biology, and Genetics at LSU Health Sciences Center New Orleans, led research that has discovered, for the first time, a genetic mutation in African-American men with a family history of prostate cancer who are at increased risk for the disease.

Forteo therapy may speed healing, improve patient outcomes after rotator cuff surgery (News-Medical-Net)

Tears in the shoulder’s rotator cuff, a common sports injury, are painful and restricting. Surgery to repair the damage is successful for pain management, but in many patients it does not result in full recovery of function due to poor healing. New research shows an approved therapy for osteoporosis, Forteo, may speed healing and improve patient outcomes.

The problem with Comparative Whole Genomics……


I have been having this debate with a good friend and mentor.


I think Complete Genome Comparison could be a Killer App.

He thinks it could be a legal and scientific nightmare.

I think he’s right.

Let’s really think about this for a second. If history has anything to say about human behavior we need look no further than the secrecy with which gene sequences were hunted.

Hell, even Science makes mention of it several times. The Article “Data Hoarding Blocks Progress in Genetics” might be a good read if you are interested.

Guys like Daniel MacArthur over at Genetic future point out some good points about the difficulty in making sense of all the noise that exists in genomes. But the problems go even further than that. Hell, CNV can differ in IDENTICAL TWINS!!!! Say Wha?

So what do we have to say about this? Phenotype and comparison are kings. Databases of “normals” and disease afflicted need to be developed. They need to be curated, they need to be “shared”

Ahem, excuse me? Did you say “shared?”

Yes, I did say shared.

Exec/USGOVT/BGI/UK/Etc- “Well, sure we would like to give that idea more credence and study it. And the implications it may bring. Would you be so kind as to forward your attorney’s information so that our attorneys can consult with yours in order to bankrupt you and send you away with you radical thinking?”

He has me convinced (a tough thing to do) that the level of collaboration amongst human geneticists and Venture Capitalists might not be exactly the level of their physician brethren….

What happens when you get access to a database, but not “all of it”

Who pays? Who benefits? Who gets rights of discovery? Who pays the Nosferatu? (sorry Dan)

With Sequencing as a Service, do you have these problems licked? Probably not.

So when Daniel points out every geneticist afflicted with a disease feel good discovery, there are about 100 nightmare scenarios of chasing down rare variants that turn out to be nothing except a good excuse to burn through 10 million dollars……..

I begin to say, well how can we pick that up quicker? Comparative Whole Genomics.

Great, which database do I start with? Do I have to use 20 or 200 databases? How can I afford such work? Which one of the 200 won’t make a play legally to own my discovery?

Ahh, yes. It is a good time to be a genome centric attorney. But a nightmare to launch a business where you depend on someone else’s database………

The Sherpa Says: Yes, sugar plums, ponies and lemon drops for as far as the eye can see for Genomics! I hope Andy will bring this back to earth……..Or maybe Glenn Close can show us where the fruit punch swimming pool is?

Morgue Slabs, East End of London, Free to a Good Home




This just in from Morbid Anatomy reader Eoin:

I work at an artists studio and we are currently having a clear out. We have four old morgue slabs and their bases that we are trying to dispose of. They are free to a good home but the new owner must take them all and arrange their own pick-up and delivery, they weigh well over a ton! Each slab is a four person lift. They are currently in the East End of London. I hope that we can find a new home as soon as possible (within a week to ten days) or we will have to unfortunately dump them.

Interested parties can email Eoin at studio@makesomespace.co.uk.

Onion Cream Treats New Stretch Marks

A moisturizing cream whose active ingredient is extract of onion can help to take the redness out of new stretch marks.

Knitted Heart

Kevin Hsiu

Cross stitching has never been so fun!  Kevin Hsiu claims this work of art made his grandma quite proud!  Yay Kevin.

[via Behance]

Tonight at Observatory: “Imaging the Diorama” An Illustrated Lecture with Diane Fox


Tonight at Observatory! Very much hope to see you there!

“Imaging the Diorama:” An Illustrated Lecture with Diane Fox
Presented by Morbid Anatomy

Date: Thursday, March 11
Time: 8:00 PM
Admission: $5.00

In 1889 Carl Akeley, working for the Milwaukee Public Museum, created the first total habitat diorama by arranging stuffed muskrats into a facsimile of their natural environment. While the originators of the diorama strove to heighten its sense of reality, many contemporary artists have used the medium’s format to comment on its artificiality or hyper reality.

This lecture will examine the work of several photographers who use the form of the natural history museum diorama to comment on the connection (or lack of connection) between the human and natural world.

Diane Fox is a Lecturer in the College of Architecture and Design at the University of Tennessee in Knoxville where she teaches graphic design and photography. Fox received her MFA from The University of Tennessee and her BFA from Middle Tennessee State University. Her current body of photographic work, “UnNatural History,” is composed of images shot in various natural history museums in the US and Europe. Her solo exhibits have been exhibited in the Erie Art Museum, Erie, PA; Tower Fine Arts Gallery, SUNY Brockport, Brockport, NY; Gallery Stokes in Atlanta, GA; Santa Reparata Gallery, Florence Italy; Apex Gallery, South Dakota School of Mines and Technology, Rapid City, SD; Sarratt Gallery, Vanderbilt University Nashville, TN; and Dom Muz Gallery, Torun, Poland among others. You can see some of her work at dianefoxphotography.com.

You can get directions by clicking here. You can find out more about Observatory here, join our mailing list by clicking here, and join us on Facebook by clicking here.

Image: “Tiger and Crows, Natural History Museum, London, England.” Diane Fox

The Annual Mütter Museum Ball, Friday March 12, 2010, Tomorrow Night!


If you’re free and in the Philadelphia area tomorrow night, why not spend the evening at the 2010 Annual Mütter Museum Ball? A staff member of the Mütter has assured me that the event will “very ‘Mutterian’– all Victorian and 19th-century inspired.” All that, plus absinthe sponsorship and the encouragement of “festive, 19th-century inspired garb” for participants!” I so wish I could go! Full details follow:

VIP includes open bar, special hors d’oeuvres and access to the
VIP Vieux Carré Absinthe Lounge
Doors open at 7:30PM
$100

General includes beer & wine bar and hors d’oeuvres
Doors open at 8:30PM
$50

Featuring Philly’s hottest DJ, Maria V!
Festive, 19th-century inspired garb encouraged!

Co-Sponsored by Vieux Carre Absinthe, Pennsylvania Hospital, Cephalon, American Exhibitions, Bones Clones, Inc. and GIANTmicrobes

Click here to find out more and purchase tickets. Click on invite to view larger more detailed version.

Single and unhappily married men are at 64% higher risk of dying from stroke

Men who were single in the 1960s were 64% more likely to suffer a fatal stroke over the next three decades than their married counterparts.

The risk of fatal stroke was also 64% higher in men who reported dissatisfaction with their marriages than in men who rated their marriages as successful.

That figure is comparable to the risk of fatal stroke faced by men with diabetes.

References:
Single Men Have Higher Risk of Stroke. WebMD.

Image source: CT scan slice of the brain showing a right-hemispheric ischemic stroke (left side of image). Wikipedia, GNU Free Documentation License.

Posted at Clinical Cases and Images. Stay updated and subscribe, follow on Twitter and Buzz, and connect on Facebook.


Cancer Deaths Down Since ‘War on Cancer’

The U.S. is making gains on at least one war front, the “War on Cancer,” according to a new analysis of cancer death statistics.

BU to host bioengineering fair (The Ithaca Journal)

The fourth annual Binghamton University “I’m a Complex Kid! (ICK!) Bioengineering Fair” will be held March 20 at the Binghamton University Downtown Center. Two sessions will be offered — the first from 9 a.m. to 1 p.m. and the second from 2 to 6 p.m.

The Zacks Mutual Fund Rank Reveals Its Top 5 Health Care Funds: Franklin Biotechnology Discovery A, ICON Healthcare … (Zacks.com via Yahoo! Finance)

The Zacks Mutual Fund Rank Reveals Its Top 5 Health Care Funds: Franklin Biotechnology Discovery A, ICON Healthcare, Manning & Napier Life Sciences, Rydex Biotechnology and Fidelity Select Medical Equipment & Systems

Midday Glance: Biotechnology companies (AP via Yahoo! Finance)

NEW YORK (AP) — Shares of some top biotechnology companies are mixed at noon: Amgen fell $.06 or .1 percent, to $57.70. Biogen Idec rose $.76 or 1.3 percent, to $58.60. Celgene rose $.10 or .2 percent, to $61.86. Gilead Sciences rose $.21 or .4 percent, to $47.65.

Early Glance: Biotechnology companies (AP via Yahoo! Finance)

NEW YORK (AP) — Shares of some top biotechnology companies are mixed at 10 a.m.: Amgen fell $.15 or .3 percent, to $57.61. Biogen Idec rose $.92 or 1.6 percent, to $58.76. Celgene rose $.15 or .2 percent, to $61.91. Gilead Sciences rose $.16 or .3 percent, to $47.60.

Research Identifies New Mechanism Regulating Embryonic Development

A Princeton University-led research team has discovered that protein competition over an important enzyme provides a mechanism to integrate different signals that direct early embryonic development. The work suggests that these signals are combined long before they interact with the organism’s DNA, as was previously believed, and also may inform new therapeutic strategies to fight cancer…

Genetic Variant Greatly Increases Lung Cancer Risk For Light Smokers

Individuals with a certain type of genetic susceptibility to lung cancer face a greatly increased risk for the deadly disease with even a small exposure to cigarette smoke, a study team that includes researchers from the University of Cincinnati (UC) has concluded…

Scientists’ Understanding Of Limb Growth Altered By Roving ‘Sonic Hedgehog’ Gene

Sonic hedgehog, a gene that plays a crucial rule in the positioning and growth of limbs, fingers and toes, has been confirmed in an unexpected place in the embryos of developing mice – the layer of cells that creates the skin. Named for a video game character, Sonic hedgehog describes both a gene and the protein it produces in the body…

Genetic researchers share $500,000 prize for medicine and biomedical research (Minneapolis-St. Paul Star Tribune)

ALBANY, N.Y. – Three American scientists who contributed to the mapping of the human genetic blueprint — an advance that continues to give the medical world a better understanding of human disease — were awarded the nation’s richest prize in medicine and biomedical research Wednesday.

US genetic researchers win $500K US medical prize (AP via Yahoo! News)

The richest U.S. prize in medicine and biomedical research is going to three American scientists who contributed to the mapping of the human genetic blueprint — an advance that gives the medical world a better understanding of human disease.

Genetic researchers win $500K US medical prize (San Francisco Chronicle)

Three American scientists who contributed to the mapping of the human genetic blueprint _ an advance that continues to give the medical world a better understanding of human disease _ were awarded the nation’s richest prize in medicine and biomedical research… Medicine – United States – Research – Disease – Medical research

US genetic researchers win $500K US medical prize (Sify News)

The richest U.S. prize in medicine and biomedical research is going to three American scientists who contributed to the mapping of the human genetic blueprint — an advance that gives the

Genetic researchers share $500,000 prize for medicine and biomedical research (Minneapolis-St. Paul Star Tribune)

ALBANY, N.Y. – Three American scientists who contributed to the mapping of the human genetic blueprint — an advance that continues to give the medical world a better understanding of human disease — were awarded the nation’s richest prize in medicine and biomedical research Wednesday.

US genetic researchers win $500K US medical prize (AP via Yahoo! News)

The richest U.S. prize in medicine and biomedical research is going to three American scientists who contributed to the mapping of the human genetic blueprint — an advance that gives the medical world a better understanding of human disease.