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Fundraiser by Glenn O’Neill : Saving Eliza

Posted: October 4, 2018 at 12:44 pm

Please visit our new campaignto continue supporting the fight for children with Sanfilippo Syndrome. The campaign on this page is no longer accepting donations due to GoFundMe changing payment processors. Please visit the new page at http://www.SavingEliza.comAll funds go toward the mission of our non-profit 501c3 Cure Sanfilippo Foundation (Tax ID: 46-4322131), which is to advocate for and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome. Donations are tax deductible.

Our Story

It all started back in 2014, with this 3 minute video: Now, we truly believe we are witnessing a miracle. What else can explain more than 36,000 people already donating more than $2 million dollars, over the past 2 years, to fund a chance at life for our daughter Eliza and other children. Diagnosed 3 years ago with Sanfilippo Syndrome a terminal disease sometimes called Childhood Alzheimer's Eliza has now become the first child in the world to have been given this new treatment! The second child has also been treated and in the coming months & through next year, a few handful more children around the world will be part of this groundbreaking gene therapy clinical trial that is already showing promising results.

The WORLD decided to rally around our little girl for this greater cause, and shes become the face of this diseasea symbol for Sanfilippo parents everywhere not to give up HOPE.

And were not giving up on them either.

Many more children are still fighting, and we wont stop until every last one of them is afforded a chance at life. There are more children that need this treatment than there are available spots in clinical trials, and these precious little ones cant wait. Given the rapidly degenerative nature of Sanfilippo Syndrome, not receiving a treatment, and soon, is a death sentence. Can you imagine being one of these parents?

Since treatment, we see a new light in Elizas eyes she is connecting with us in a way we thought was gone forever. She is working to regain the skills the disease stripped away in the 6 and half years it tore through her body. She is a fighter! Other Sanfilippo children deserve this chance too. At this stage, funding is one of the only things that will accelerate research to give these children a chance. Money doesnt make the world go round, but it does bring medical treatments faster to children who are dying.

Our goal is to reach $4M here to help make this happen. Please donate TODAY to give these beautiful Sanfilippo children a rightful chance at life. Please share so the world can hear theircollective voices.

Our hearts are forever thankful for giving our daughter Eliza and others a chance at life. We are reminded of one quote from a special supporter that has helped us through the hard days: Keep the faith, and the faith will keep you. We believe!

Glenn, Cara, Beckham and Eliza (The ONeill Family)

Learn more about Sanfilippo Syndrome here http://www.CureSFF.org/about-sanfilippo

Meet just some of the Sanfilippo families here: http://www.CureSFF.org/meet-the-families

Baby SadiePaisleigh and the Butler FamilyRowen and the Fernandez FamilyIzzy and the Jurado FamilyKeira and the Esposito FamilyParker and the Talbert FamilyAbby Grace and the Ferguson familyAll funds go toward the mission of our non-profit 501c3 Cure Sanfilippo Foundation (Tax ID: 46-4322131), which is to advocate for and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome. We are out to end this disease and help ensure treatments for as many children as possible along the way. We must reach our goal and mission before it is too late for these beautiful children. With a donation and a share, you can make the difference! Action saves lives. Action brings miracles. Our daughter Eliza is proof of that.

Donations are tax-deductible.

Other donation options: -- http://www.CureSFF.org (click Donate)--By check: Cure Sanfilippo Foundation, PO Box 6901, Columbia, SC 29260

Follow the latest at http://www.facebook.com/ElizaOStory

Special thanks to the artists, who worked free of charge to help us:Video by the amazingBenjamin Von WongPhotograpy by the talented Anna Tenne Photography

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Fundraiser by Glenn O'Neill : Saving Eliza

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